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The serum calcium hasn’t dropped. In fact the last one checked was 12.2 and the alk phos was higher, the SPGOT was higher, everything was higher. I think he was pretty dehydrated though. They are giving him a litre of fluid with each dose and I think that is helping as much as anything.
It just seems like a nightmare. He can’t eat anything. He is crabby about everything. He says his pain is under control and he appears to be pain free. He just sits on the couch with his head hanging down most all of the day. I don’t know how mom takes it. She won’t leave the house. I get the mail, the groceries, we mow their lawn. Mom is held prisoner, as we all are now…to this disease. Dad is on Prednisone now, Miralax for his bowels, Ms Contin for pain…bid, Darvocet for breakthrough pain, Coumadin, Lasix, Aldactone, Potassium. He can eat only smooth foods. His dentures don’t fit and I don’t see him going into the dentist office for a fitting. He is weak. He weighs nothing. He has no shortness of breath really…doesn’t use O2. crazy ass disease

May 2020

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