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Dad had chemo today. Just the pre med of Decadron and then the Taxotere. Since there weren’t as many bags of meds…Dad called it the “Shortstack Chemo” He tolerated it just fine. No nausea this time. We ate at Perkins and he had the 55 Plus Traveler…his “regular” meal. Dad’s hair is growing at a remarkable rate…not coming in curly, black or weird at all. Silver, just like before the chemo.
Mom and I left Dad at the clinic and went to Minnards to pick up a respirator mask with a filter and goggles so Dad could mow without breathing in the dirt and other things that fly in the air around his yard. I told him to just get a space suit…!
Dad’s PT/INR was around 5.2…high as usual. The Dr. ordered Vitamin K 2.5mg every day AND Coumadin 2.5mg (the dose he has been taking) !!
How STUPID! Isn’t that like taking Milk of Magnesia AND Immodium AD I asked??!! Why take 2 pills when you can just lower the dose and take 1?? Why not just lower the dose to 1.5mg like Mark and I have wanted him to be on from the get go!!!!! I argued with the nurse a bit…of COURSE the Dr. wasn’t around. I just feel that this order is totally off and I don’t agree with it!!!! Dad doesn’t want to rock the boat but I HATE THIS ORDER!!!!!! It pissed me off. Can you tell?

I just got off the phone with Mom and she said Dad has terrible loose stools. I visited with Mark(he was at the pharmacy) and we hopefully we will get that taken care of with some metamucil or some type of bulk.
Rats…I was hoping he could tolerate this med without any trouble. I guess there are so many people who have worse symptoms we should thank our lucky stars.


On our way to Kearney in a few minutes for Dads chemo treatment. He had a CT scan last Wed and we get the results today.
Nerve wracking really…waiting for results.
What next.
This may be dads last chemo or it may not…
He wants a cigarette so bad he can’t hardly stand it.
Good thing he never tried crack or cocaine…maybe

Dad goes to Kearney for another CT scan tomorrow. I won’t be able to go as I have to work. Hopefully we will get good news.
Dad’s gotten along remarkably well with the Taxotere. He’s lost his eyebrows and eyelashes so that makes for a SURPRISE! look all the time but other than that…no probs.
The only problem we are having is with the coumadin (“blood thinner”) medication. I really feel that the Dr and nurses there have little to no idea of what a patients history is when they look at the labs and then call with med changes.
good god in heaven.
I mean…get this…if your blood is too thick you are prone to a clot so you increase your coumadin…if you are too thin…you can have a bleed out…so you may take Vitamin K…if it’s really “thin” and lower your dose. Okay…Dad has been bouncing around with his meds(per Dr. request) and yesterday…he was too “thin” Today…I can’t hardly say it with a straight face…Dad’s Dr(person of higher learning)…told my hubby…a pharmacist…to have Dad take 5mg of Coumadin and take Vitamin K…everyday in response to Mark questioning the dose of yet again…Coumadin 5mg po q day. Every time Dad has taken 5mg…he gets so thin they can’t even get the machine to read it…every time EVERY TIME. People…here is a clue…read your patients chart before making LIFE THREATENING MED CHANGES! What is up with that???
good god…good god
Dad and Mom don’t want to upset the apple cart…but I say…YOU HAVE TO STICK UP FOR YOURSELF BECAUSE…NO ONE ELSE WILL!!!!!
Anyway…after Mark called, faxed, called and visiting with incredulous surprise in his voice to the Dr, the nurse, the Dr again…the order was changed to 3 mg po q day….finally.

Dad had another chemo today. We just got back. He tolerated the chemo very well. His blood is “too thin” again. He will need vitamin K and have to hold his Coumadin for a couple days and then get his blood rechecked on Friday…here at our lab.
We met several other chemo patients today. None of which we’ve seen before.
There are a helluva lot of people with cancer in this world.
It just feels to me that you, as a patient, are on your own. You are at the mercy of the nurses and the Drs. They don’t know you from Jo Schmo down the street. I tried giving gifts…(I read that hint somewhere)…making a scene…being nice…helping out…it just doesn’t matter. You are On Your Own. If you don’t stick up for yourself you can get fucked over.
Be brave ask questions…ask a lot…be seen get noticed be your own advocate.

April 2006
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